Daniel Bradbury is believed to be one of the youngest people in the country to be diagnosed with the devastating condition.
And now he is planning to make a raft of memories with his family before his own memory fades completely.
The devoted dad was diagnosed with “extremely rare” early on-set Alzheimer’s in September last year, and inherited the condition from his dad Adrian, who died aged 36 due to the disease.
Those with this type of Alzheimer’s, known as PSEN1, tend to have the same life expectancy as the person they inherited it from.
Mr Bradbury and his partner, Jordan Evans, are now raising money to pay for a holiday for them and their 18-month-old twins Lola and Jasper to make memories together before it’s too late.
Mr Bradbury, from Nottingham, said: “I try not to think about it. I live day by day with both good days and bad days.
“It does not just affect me, it affects everyone around me as well.
“I do not know how long I have till it takes a real hold on me. I want to be as much of a dad as I can for as long as I can be.
“As my memory fades I am hoping to create lasting memories for my partner and our children so that one day they can look back on the videos and photos of us all together and cherish them.”
Like other Alzheimer’s patients, Mr Bradbury suffers from short-term memory loss, confusion and problems with his balance.
It is likely to deteriorate quicker due to his young age and ultimately lead to his death.
Mr Bradbury was told there was a chance he had the condition when his partner was four months pregnant in early 2016, but decided not to get tested at the time.